Girl, 6, who ‘wasn’t herself’ and wrongly sent home by doctors dies after being given just nine months to live
“As you’ve noticed, we’ve not been on social media for the last couple of weeks. He called on viewers to “carry on dancing for our beautiful little Joules, because I know she’ll still be dancing.”


Joe described coming to terms with the idea of losing his daughter. “We didn’t leave that little girl’s side.” Joe and Elisha Smith took their daughter Joules, 6, to hospital after growing concerned over “a few little changes”. Since her death, Joe’s update video has received over 2.5 million views and the “dancing for Joules” tag also surpassed over 3,000 videos on TikTok, with users dedicating their videos to the tot and her family.
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A LITTLE girl was given just nine months to live after her parents noticed she just “wasn’t herself”. There are two main types, with non-cancerous benign tumours growing more slowly and being less likely to return after treatment.”Unfortunately it is inoperable and terminal,” Joe said, fighting back tears. Tumours of this sort currently kill over 90 per cent of children who have it within 18 months of diagnosis, Children with Cancer UK states.
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He didn’t go into much detail about the symptoms Joules had been experiencing that caused them alarm, but said the tot “wasn’t herself”. “This is going to be the hardest video I’ve ever had to make and will ever have to make,” Joe said, sharing that his family’s world had got “flipped upside down”.
Source: NHSA tearful Joe added: “We take so much comfort in the fact that she inspired and touched the life of so many people around the world.”He also requested that people donate to The Royal Marsden Cancer Charity on Joules’ behalf. The nine most common symptoms are:

In a video captioned “Joules we love you forever”, the dad said: “Our beautiful little dancing queen passed away in between me and Elisha in our bed. “Parents know best, so we took her back the following day and we were told the devastating news that Joules has a mass on her brain.” Joe once again posted a video on TikTok to share the devastating news of his daughter’s passing – just seven months after her diagnosis. “She was the bravest, kindest, most beautiful little girl and we miss her so much.”
The most common symptoms of a brain tumour

“Joules has been an absolute inspiration to everyone and I’m so proud to be her dad.”
- Headaches
- Seizures
- Feeling sick
- Being sick
- Memory problems
- Change in personality
- Weakness or paralysis on one side of the body
- Vision problems
- Speech problems
If you are suffering any of these symptoms, particularly a headache that feels different from the ones you normally get, you should visit your GP.”We noticed a few little changes, we took her to the hospital and got told everything was fine.”
He added that Joules’s funeral will also take place at The Garden of Eden Crematorium in Kent on December 27. He used the opportunity to raise awareness about childhood brain cancer, and continued to do so in the months following. He encouraged anyone joining to “wear pink and blue for Stitch and Angel colours, but you’re welcome in black.”The family were told Joules might only have about nine months to live. Joe thanked everyone for sharing their “dancing for Joules” videos online and vowed to “carry on” raising awareness around DIPG.They were assured by doctors that nothing was wrong but decided to take her back the next day, trusting their gut instinct that something wasn’t right. The dad shared that Joules was undergoing radiotherapy to manage her symptoms and that he and his partner had decided to keep the tot “unaware” of her illness.
‘Still dancing’
Brain tumours reduce life expectancies by an average of 27 years, with just 12 per cent of adults surviving five years after diagnosis.The family was given the devastating news that Joules had a “worst of the worst” brain tumour – and it was terminal. The disease is the most deadly cancer in children and adults aged under 40, according to the Brain Tumour Charity.Cancerous malignant brain tumours can either start in the brain or spread there from elsewhere in the body and are more likely to return.The posted videos dancing with his little girl, urging viewers to “dance for Joules” as part of their efforts to shed light on her diseaseThe family, who live in Essex, were then rushed to King’s College Hospital in London where they were told the tot had a brain tumour classified as the “most aggressive form of cancer”.
“She will slowly deteriorate and we’ve got to sit back and watch our beautiful, funny little girl fade away and the thought of that is absolutely killing us.”Joe Smith
She was the bravest, kindest, most beautiful little girl and we miss her so much”The reason for that is we had to spend every single second with our beautiful princess Joules – and we did just that.Joe described Joules as his “best friend” and “little dance partner”. To support the family in their difficult time, their friend and TOWIE star Kirk Norcross also set up a GoFundMe page, which amassed almost £96,000. Joe said they’d come home but he and his partner had a feeling something just wasn’t right.
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The little girl sparked a sensation online as her dad Joe – a TikTok creator – posted videos of the two of them dancing on the app, in a bid to raise awareness around childhood brain cancer. “Everyone who knows us or knows Joules or has followed us, you’re all welcome,” the dad added.